Deciding About Being on a Ventilator When You Have a Terminal Illness (2024)

How can you decide about being on a ventilator when you have a terminal illness?

Your Care Instructions

A ventilator is a life-support machine that helps you breathe if you can no longer breathe on your own. The machine provides oxygen to your lungs through a tube. The tube enters your mouth and goes down your throat to your lungs. Most people on ventilators have to be fed through another tube that goes into the stomach.

You may feel that being on a ventilator would prevent a "natural" death or would keep you alive longer than necessary. Or you may feel that being on a ventilator would extend your life so you can do certain things, such as saying good-bye to loved ones.

The decision about whether to be on a ventilator is a personal one. Be sure to talk it over with your doctor and loved ones.

Why might you want to be on a ventilator?

  • You think you may be able to return to your normal activities.
  • You need help breathing because of a short illness or a problem that is not related to your terminal illness.
  • You would like more time to say good-bye.
  • You feel that there are more benefits than risks.

Why might you not want to be on a ventilator?

  • You have other long-term health problems.
  • You may not be able to return to your normal activities.
  • You want a calm, peaceful death. You do not want to spend the rest of your life on a ventilator.
  • You feel that there are more risks than benefits.

Deciding About Being on a Ventilator When You Have a Terminal Illness (1)When should you call for help?

Be sure to contact your doctor or nurse advice line if:

  • You want to learn more about being on a ventilator.
  • You change your mind about being on a ventilator.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line (811 in most provinces and territories) if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

Where can you learn more?

Go to https://www.healthwise.net/patientEd

Enter T485 in the search box to learn more about "Deciding About Being on a Ventilator When You Have a Terminal Illness".

Current as of: March 26, 2023

Author: Healthwise Staff

Clinical Review Board
All Healthwise education is reviewed by a team that includes physicians, nurses, advanced practitioners, registered dieticians, and other healthcare professionals.

Deciding About Being on a Ventilator When You Have a Terminal Illness (2024)

FAQs

How serious is being put on a ventilator? ›

When using a ventilator, you may need to stay in bed or use a wheelchair. This raises your risk of blood clots, serious wounds on your skin called bedsores, and infections. Fluid can build up in the air sacs inside your lungs, which are usually filled with air. This is called pulmonary edema.

What are the chances of someone coming off a ventilator? ›

This knowledge stems from the fact that patients who accidentally self-extubate have a 31-78% risk of reintubation. That means the same patient population has a 22-69% chance of successfully weaning off mechanical ventilation.

What happens if someone can't come off a ventilator? ›

If ventilation is likely to be prolonged, the decision may be made to perform a tracheostomy. This is when the doctor makes an opening in the patient's neck and inserts a tube (smaller than the ET tube) which is then connected to the ventilator.

What are the side effects of being on a ventilator? ›

What are the risks of mechanical ventilation?
  • Bacterial infections. ...
  • Lung damage. ...
  • Collapsed lung. ...
  • Heart and blood flow changes. ...
  • Sometimes, people aren't able to come off a ventilator. ...
  • Prolonging the dying process.

What is the life expectancy of a person on a ventilator? ›

In general, most patients did not survive longer than 1 to 3 years, although some patients did exhibit a longer survival time. All patients survived the initial 21 days of treatment by mechanical ventilation, and the survival times reported here exclusively refer to survival duration thereafter.

What are the chances of survival after a ventilator? ›

For the 157 discharged prolonged mechanical ventilation patients, the one-year and five-year survival rates were 50.3% and 32.6%, respectively. For the 60 ventilator-dependent patients, the one-year and five-year survival rates were 31.7% and 13.2%, respectively.

Is a ventilator the last stage? ›

For some people, they may not be able to breathe on their own without the machine and so they may die very quickly once ventilation is stopped. Some people might be able to breathe on their own when the ventilator is first taken away, and then their breathing will slow and stop.

Can a person hear you when they are on a ventilator? ›

Your loved one's eyes will be closed, and they can't move or speak. But their brain can still process sounds and sensations. This means they can hear and feel everything around them. One tip for how to support a loved one on a ventilator is to be comforting.

How long can you be on a ventilator before brain damage? ›

Markers in the serum for astrocyte damage and neuronal damage were also higher in the mechanically ventilated group. Therefore, our study demonstrated that considerable hippocampal insult can be observed after 50 h of lung-protective mechanical ventilation, sedation and physical immobility.

What is the next step after a ventilator? ›

A doctor may move a person from a ventilator to a tracheostomy if they require long-term ventilation. A tracheostomy has certain benefits over ventilation, including: reducing trauma to the throat and vocal cords. reducing work of the airways by increasing the airway space and reducing airway resistance.

Can anyone come back from ventilator? ›

Usually, people can be weaned when their healthcare team determines that they have recovered enough from the problem that caused them to need the ventilator and that they would likely be able to breathe on their own.

Is a ventilator considered life support? ›

A ventilator is a life-support machine that helps you breathe if you can no longer breathe on your own. The machine provides oxygen to your lungs through a tube. The tube enters your mouth and goes down your throat to your lungs. Most people on ventilators have to be fed through another tube that goes into the stomach.

What are the disadvantages of a ventilator? ›

Immobility: You can't move much when you're on a ventilator, especially when you're sedated. That can lead to bedsores, which may turn into skin infections. You're more likely to get blood clots for the same reason. Your muscles, including those that normally help you breathe for yourself, may get weak.

How long can a person stay on a ventilator before needing a trach? ›

Patients with respiratory failure who cannot be weaned within 7–10 days are candidates for tracheostomy. Most severely injured trauma patients requiring intubation longer than 5 days will require airway support and will benefit from early tracheostomy.

Can you be conscious while on a ventilator? ›

Most often patients are sleepy but conscious while they are on the ventilator—think of when your alarm clock goes off but you aren't yet fully awake. Science has taught us that if we can avoid strong sedation in the ICU, it'll help you heal faster.

Is being on a ventilator the same as life support? ›

A ventilator is a life-support machine that helps you breathe if you can no longer breathe on your own. The machine provides oxygen to your lungs through a tube. The tube enters your mouth and goes down your throat to your lungs. Most people on ventilators have to be fed through another tube that goes into the stomach.

How long will a hospital keep someone on a ventilator? ›

Results: On average, patients had a hospital stay of almost 6 weeks and required mechanical ventilation for approximately 4 weeks; 43.9% of the patients died in the hospital. None of the patients discharged from the hospital were able to return home initially without assistance.

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